A tiny group of cells that changed my world

A tiny group of cells that changed my world
Click on the image to find out about what the Pituitary Gland does

About Me

My photo
I'm in my 30's, which to me sounds very odd. I only feel like I'm in my 20's and definitely not a grown up. I have spent the last 7 years battling with my health; firstly spending 2 years getting a diagnosis for a tumour on my pituitary gland which was causing Cushings Disease; then spending the rest of my life dealing with a pituitary gland that doesn't work. However, I have a fantastic family and an amazing boyfriend who I live with and adore - they keep me going and inspire me to try to make the most of life and my life in general.

Monday 21 February 2011

Penelope Ball Python and Cyril Corn Snake...

Cyril is his usually cheeky chirpy self, and has enjoyed a nice mousey for his dinner. I have cleaned out and made nice again both viv's so they love that. Penelope has been having some trouble shedding and still had some old skin on her head and back so I had to give her a little bathing session. She didn't seem to mind too much until I got to her head - then she got a little nervous and so did I! Actually she is more timid than anything else and I managed it fine. She is very excited because she has got some new plants in her home and she is thouroghly exploring them. She has enjoyed her rat dinner too and they are both now fattie snakes. Happy, fattie, snakies.

Doctors, doctors

So went to se the doctor this morning to find out what ahd happened to my referral letters. He claims they were both written and "can't understand" what has happened. Great. Well, just get em printed and send them off! Pllleeease! It's my life thaat is on hold here!

Uh oh. Broke a mug....

Gutted. I managed to break one of my favourite mugs today; a Cath Kidston Cowboy mug
 http://www.cathkidston.co.uk/p-13417-cath-kidston-cowboy-crush-mug.aspx

We've only got two, now one is left and it's lonely! I will have to go and get a replacement....boo hoo *sniff*

Saturday 19 February 2011

Lottie is on the loose!

Way hey! We picked up the new car this morning, my new little mini... she is so cute! I just need to get used to all the new fangled gadgets - it took me 10mins to work out how to start it... duh. Turns out you have to have the clutch depressed. Okay that one is sussed. I can have my phone on hands free, listen to my ipod, have a coffee (there are two cup holders by the gear stick) how perfect can you get?

Boyf. seems pleased and he will drive it too....occasionally! Hee hee

Thursday 17 February 2011

Not gonna let the bastards get me down.

Okay so I'm used to waiting and waiting now so.... *siiiiigghhhh* deep breath, suck it up and carry on. Besides I am too excited about picking my new car up on Saturday morning - insurance all sorted so just need to collect it now! Whoop whoop! Boyf. has actually insured me on both my new mini AND his Audi TT. His words were 'I know I must be mad'. Hee hee hee Lottie's on the loose! Let me at em, let me at em!

Wednesday 16 February 2011

I feel a bit sick...and totally fed up.

About 3/4 weeks ago I went to my doctor to ask him to write referrals for the CFS specialist and the neurosurgeon. I find out today that they still have not received any such request from my doctor! Why? Why? I ask, how long does it take to write a referral letter and post it? Ok a week maybe two I can understand if they have a lot of admin to do but 4 weeks later - this is a bit of a joke. My life is on hold until I can get more investigations and they don't seem to realise how frustrating and crippling this is. I am totally fed up. I have had to book another appointment with my doctor on Monday (the first day I can be fit in - it's Wednesday today), so I can ask him again to please send the referral requests I asked for. I just can't stand it. It's been like this for the last 8 years - constantly waiting for doctors to help me and chasing them up and pushing for investigations or diagnosis... thats whats depressing. Eight years of your life. Gone. Just like that. The stupid thing is when the referral requests are received I won't be surprised if its another 6 months until I can be seen!

Tuesday 15 February 2011

Project number 2 - The Kitchen Table


So take one round brown kitchen table. Spray the top with gold paint. Add decopatch paper and seal with decopatch glue/varnish. Then paint legs and table edge with magnolia dulux paint.

Hey presto, shabby chic table!

It can't be bad, boyf. actually likes it too!

Stiiillll waiting...as my life drips away....

Still no news about appointments from Oxford - waiting, waiting, waiting for Neurosurgeon and CFS specialist. Why does everything take so long! ahhhh!

Monday 14 February 2011

Longleat Centerparcs Booked!

Finally, we have managed to reach a decision about where to go for our break in March.... Longleat Centerparc. It makes sense because we have vouchers courtesy of Tesco's to go to Longleat Park for a day and that will be fantastic. http://www.longleat.co.uk/ We've never been to Centerparcs before so it will be interesting to see what it will be like. We're staying in a woodland lodge which has all its own facilities (kitchen, TV, DVD, Wifi etc) so hopefully it will be a nice little pad to relax in.... Also we have chosen mid-week dates which makes it a LOT cheaper. It's arriving Monday and departing Friday, but to be honest I think thats long enough for a couple stay. Hopefully I will be able to take my laptop so  I can update my blog so I can let you know what its like!

No Cakes, biscuits, chocolate, potatoes or bread.

Thats it. I am going to get rid of the developing paunch. No more naughty stuff for a while, I just don't feel happy and I can't afford new clothes! Ha!

Saturday 12 February 2011

Ooo oo! Excited! New Car whoop whoop! xxx

OMG! Going to get a new car - a Mini One Graphite. I can't wait, we are going to pick it up tomorrow morning.... freedom again, yes! This is what it is like: http://www.yosax.com/mini-cooper-graphite

I haven't had a new car for years, it's going to be my new baby.

Friday 11 February 2011

Car still broken :(

Oh dear, it's so pants how much we rely on our cars... mine is still at the garage and apparently needs a new gearbox! Boooo. We are going to look for a new car this weekend though so thats exciting, looks like a new mini cooper is on the cards! Whoop whoop! Hopefully I won't be stuck at home for much longer.

Over sensitive?

It's 07.12am. Boyf. has left for work and I feel a little bit sick. I told boyf. that I dreamt last night I found him with another women. (The dream came from a comment about his ex coming back I think). This in itself was bad enough, he then says to me 'thats really weird, I dreamt I was with another women last night too' he then proceeded to tell me it was ok though it was just a sex thing and she was a really fit mexican looking women, purely lust. I am actually shocked at how upset I felt at hearing this - even writing about it now makes me feel sick. It's odd because even though he hasn't actually done anything, it's like we are lying in bed with one another and he is dreaming of being with another women. Should I feel this way? I know even when we are in relationships we can dream of being with other people, and it doesn't mean anything, but I am thinking now we should definitely keep it to ourselves. I actually shed a tear which of course I didn't let boyf. see as was a bit embarrassed. It does actually scare me a bit as I love Boyf. so much and that is why I got upset, I could also say it's my own insecurity and maybe I don't feel secure in our relationship. I think it's just because I found the conversation quite horrible.

Wednesday 9 February 2011

Baby talk

I looked after my youngest neice this morning whilst her mummy and sister went to toddler group. It was interesting looking after a baby, I do have quite a lot of experience with babies considering my two sisters and bro all have children, but this was different. I was quite relaxed although holding her for a long time started to become a bit uncomfortable, I may have spaghetti arms now! It wasn't too bad that's what I mean, you can have visions of a screaming baby and not knowing what to do with it, but she was fine. And I was fine. Now, I am not broody not at all, but it was comforting to know that I could feel comfortable in that situation - does that mean something or nothing? Boyf. would definitely say nothing.......problem is; 31yrs old, unmarried.... am I going to get too old before I am ready to conceive? I definitely would want to be married before children, I'm traditional in that sense, but then I think you need to enjoy a few years of married life with your partner before a child is brought into the equation. Of course it doesn't have to be that way but I think thats how I would want it... hmmm, I just don't know.

Tuesday 8 February 2011

One week after laser surgery but still a clumsy doris!

Blimey, you would think now with 20/20 vision I would be a bit more spatially aware, apparently not. In Smiths with my sister looking at cards, I managed to somehow knock nearly a whole shelf worth of cards off, creating a bit of a cufuffle. I then proceeded to walk by the only sticking out shelf nearly ripping it off and causing a really loud noise so that everyone would notice! Brilliant. To top it all off, I then queued up to pay for my items, clutching my £5 off voucher....only to be told when I finally reached the till that it wasn't valid until 2 days time. I left the shop with nothing, I wasn't going to buy the goods without my money off. I'll be back Thursday and see what mayhem I will make then! Ha!

Friday 4 February 2011

Goggle eye Joe! 4 Days after Laser Eye Surgery...

Wow. All I can say laser eye surgery is a surreal and amazing experience. I could see perfectly straight away after it was done and 4 days later it just keeps getting better and better.
So, what happens is you are taken into the surgery room and you lie on a dentist type couch. A nurse puts anaesthetic eye drops in and you close your eyes and rest while they take effect. The surgeon then checks the anaesthetic has taken effect by gently touching your eyeball - I felt absolutely nothing. Once this check has been done a plastic clip is placed over your eye (only one eye is done at a time), this is slightly uncomfortable as you can feel a squeezing pressure but it's not painful, then there is a clicking sound and the small flap is cut around your iris. This literally takes seconds and is over before you know it. It's time to have the laser now - this is the easiest part, you can't feel anything but you can see a flashing dot which you concentrate on and 10 seconds it's all over. It is literally that fast. I was really pleasantly surprised. My surgeon was Joanna McGraw, she was very friendly and explained everything clearly to me, she is a Harley Street surgeon who travels to reading to do the procedures there.
I would say it is well worth doing, and now I don't need to worry about losing my glasses or getting them scratched or paying out for new ones!!
My Dad is now even thinking of getting his done, he accompanied me throughout my process and saw how easy it was so hopefully we will both be free of ol' blind pugh!

Tuesday 1 February 2011

Tuesday Morning before the laser surgery......

It's 9.15am and I am up and ready. No makeup on or perfume. Yes, I look like the witch from Rod and Emu.....I don't feel nervous at all, just excited really, I think it's going to be weird being able to see properly after years of wearing glasses. I first got glasses when I was about 8 years old, I also developed asthma at about the same time. Great. Just when you don't want to be the geeky child. The doctors think the asthma drug could be the reason I developed a tumour - the steroids in the medication. I did grow out of the asthma when I was 18 but 10 years is a long time to be on steroids. Pituitary tumours are not genetic and they don't really know why they develop. Oh well, at least I am going to have one problem fixed....
On another note poor Boyf. is in bed with food poisening, he didn't sleep a wink last night and I had to sleep in the other room. I have given him paracetamol now and left him with plenty of water, all you can do is sleep it off. He text me this morning from his room which was really sweet, saying 'I love you poppet' I know for this reason he must be really ill because he never does things like that usually!