A tiny group of cells that changed my world

A tiny group of cells that changed my world
Click on the image to find out about what the Pituitary Gland does

About Me

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I'm in my 30's, which to me sounds very odd. I only feel like I'm in my 20's and definitely not a grown up. I have spent the last 7 years battling with my health; firstly spending 2 years getting a diagnosis for a tumour on my pituitary gland which was causing Cushings Disease; then spending the rest of my life dealing with a pituitary gland that doesn't work. However, I have a fantastic family and an amazing boyfriend who I live with and adore - they keep me going and inspire me to try to make the most of life and my life in general.

Wednesday, 30 March 2011

Chronic Fatigue Syndrome (CFS)

I saw Dr. B. Angus today, a chronic fatigue specialist in Oxford. After a fairly detailed chat, it seems I do fit into the CFS group. This means I will be transferred to work with a CFS clinic and given my own 'personal trainer'. There is not a quick and fast cure - they will use CBT (cognitive behavioural therapy) with what is called 'pacing'. This is living your life on a daily basis in a more planned and structured way to maximise the amount of energy you have. I have to admit I am apprehensive, nervous and perhaps a little scared, just because I am not sure exactly what this therapy will entail and whether it will actually work for me. The Dr. tried to reassure me that 70-80% of people recover but because I am not sure how it is all going to happen I can't feel convinced just yet. One thing I know is that it will take a lot of time and effort on my part and starngely, my sis-in-law has just been diagnosed with it as well so we can try and encourage each other. If you want to know what CFS is, it is like ME but the explanation can be found here: http://en.wikipedia.org/wiki/Chronic_fatigue_syndrome

I was also recommended two books to read: CFS - The Facts by Mike Sharpe and Overcoming Fatigue by Mary Burgess.

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