Have been feeling a bit shite all day due to a chesty cough which feels like I have swallowed acid. No, I am not being a drama queen, it really hurts! Anyway saw the psychologist and it was helpful actually, we worked through giving some structure to my day and when to do things when I have energy etc. It sounds logical and it is; but when you're tired you get distracted very easily and instead of concentrating fully on one thing you end up using cider vinegar in your cooking instead of sweet cider! Also, sometimes you become unsure of what you should be doing and whether you should allow anytime to do something you enjoy, especially when you know your Boyf. has been working hard all day again. Anyway so despite feeling crappy physically, I do feel a bit more positive. Its like I can start thinking about longer term goals again too. I am hopeful about an idea to start doing vintage parties with my big sis so I might start putting some research time into that. This week though and next week are going to be very important to me as this Wednesday I am seeing the chronic fatigue specialist (CFS) and I am hoping I might get some answers from him or at least get somewhere nearer to knowing where I stand as far as how I will need to live my life from now on. Next Wednesday I am seeing the neurosurgeon which again I am hoping will give me some answers to my physical well being. I just want to be able to make some firm decisions about my life and about where I am headed.
I live with a non-functioning pituitary (since an operation in 2005 to remove a tumour causing Cushings disease; http://csrf.net/) - this blog describes my fight to get more action from the doctors and my own personal experiences in daily life, similar to that of Bridget Jones Ha!
About Me
- Lottie4979
- I'm in my 30's, which to me sounds very odd. I only feel like I'm in my 20's and definitely not a grown up. I have spent the last 7 years battling with my health; firstly spending 2 years getting a diagnosis for a tumour on my pituitary gland which was causing Cushings Disease; then spending the rest of my life dealing with a pituitary gland that doesn't work. However, I have a fantastic family and an amazing boyfriend who I live with and adore - they keep me going and inspire me to try to make the most of life and my life in general.
Blog Archive
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2011
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March
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- Chronic Fatigue Syndrome (CFS)
- Got the snots. Boo.
- 3rd Neuropsychologist appointment
- Cups and Saucers
- Not too hot.
- Got the new bed - time to decorate.
- Having a cooking revelation!
- To get married or not to get married; that is the ...
- Centerparcs Longleat
- GOOD NEWS! CFS Specialist appt has arrived!
- Next psychologist appointment
- 1st Neuropsychologist appointment!
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March
(12)
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