A tiny group of cells that changed my world

A tiny group of cells that changed my world
Click on the image to find out about what the Pituitary Gland does

About Me

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I'm in my 30's, which to me sounds very odd. I only feel like I'm in my 20's and definitely not a grown up. I have spent the last 7 years battling with my health; firstly spending 2 years getting a diagnosis for a tumour on my pituitary gland which was causing Cushings Disease; then spending the rest of my life dealing with a pituitary gland that doesn't work. However, I have a fantastic family and an amazing boyfriend who I live with and adore - they keep me going and inspire me to try to make the most of life and my life in general.

Wednesday, 16 February 2011

I feel a bit sick...and totally fed up.

About 3/4 weeks ago I went to my doctor to ask him to write referrals for the CFS specialist and the neurosurgeon. I find out today that they still have not received any such request from my doctor! Why? Why? I ask, how long does it take to write a referral letter and post it? Ok a week maybe two I can understand if they have a lot of admin to do but 4 weeks later - this is a bit of a joke. My life is on hold until I can get more investigations and they don't seem to realise how frustrating and crippling this is. I am totally fed up. I have had to book another appointment with my doctor on Monday (the first day I can be fit in - it's Wednesday today), so I can ask him again to please send the referral requests I asked for. I just can't stand it. It's been like this for the last 8 years - constantly waiting for doctors to help me and chasing them up and pushing for investigations or diagnosis... thats whats depressing. Eight years of your life. Gone. Just like that. The stupid thing is when the referral requests are received I won't be surprised if its another 6 months until I can be seen!

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