I had my hydrocortisone day curve test done again on Monday. I've had it before but it doesn't get any easier. We (my mum and I) had to be in London at the hospital for 9am so they could take the first blood smaple after my morning pill. (I take 10mg at 8am, 5 at noon, 5 at 5.30ish). They then take blood an hour before your pill and an hour after your pill so as you can imagine its a loooooong day. Last blood gets taken at 6.30. So you have to sit with a canulla in your arm which make it easier to take blood at intervals, although unfortunately my canulla stopped working for the last two bloods so we had to swap arms! I must admit I felt really depressed when I arrived at the hospital because I knew I was going to be there all day, but I had to keep telling myself it was worth it and reminding myself that this test was for a purpose and if something positive came from it it would all be for the greater good; ie I will be the best I can be. So far I have had lots of blood taken, new MRI scans done, this day curve test and last but not least will be a dexa scan which will check my bone density. 14th March I then go back to the endocrine specialist in Hammersmith hospital and discuss the results.... I am not going to hope for anything because I will set myself up for dissapointment, but at least I will know definitely that I am the best that I can be.
I live with a non-functioning pituitary (since an operation in 2005 to remove a tumour causing Cushings disease; http://csrf.net/) - this blog describes my fight to get more action from the doctors and my own personal experiences in daily life, similar to that of Bridget Jones Ha!
About Me
- Lottie4979
- I'm in my 30's, which to me sounds very odd. I only feel like I'm in my 20's and definitely not a grown up. I have spent the last 7 years battling with my health; firstly spending 2 years getting a diagnosis for a tumour on my pituitary gland which was causing Cushings Disease; then spending the rest of my life dealing with a pituitary gland that doesn't work. However, I have a fantastic family and an amazing boyfriend who I live with and adore - they keep me going and inspire me to try to make the most of life and my life in general.
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